The Cultural Adaptation for People Living with AIDS in Taiwan

Sunday, November 1, 2009

Chi-Wen Chen, MSN
Department of Nursing, Kaohsiung Medical Univeristy Hospital, Kaohsiung Medical University, Kaohsiung, Taiwan
Min-Tao Hsu, PhD
School of Nursing, Kaohsiung Medical University, Kaohsiung, Taiwan
Yaw-Sheng Lin, PhD
Clinical and Counseling Psychology, National Dong Hwa University, Hualien, Taiwan
Pei-Ling Li, MSN
College of Nursing, Chung Jen College of Nursing, Health Science and Management, Chiayi, Taiwan

Learning Objective 1: realize how people living with AIDS and how they deal with the disease.

Learning Objective 2: realize the culture stigma for people living with AIDS.

The aims of this study were to explore the living experience with multiple stigmas for AIDS patients in Chinese culture and understand the coping of disease within culture.
By using narrative research, the researchers collected data through in-depth interview and observation from seven AIDS patients in a medical center located at southern Taiwan in order to understand how they live with AIDS in such a culture.  The results revealed three major themes: a) “conceal the secret in mind”; b) “varnish unacceptability”; c) “take the blame from Chinese traditional culture” in which having a family heir is prior cultural role and intertwine the living image after suffering the disease.
In the research, we found that people living with AIDS had to keep secret to themselves about they got AIDS, especially, people in Taiwan have a lot of myths on AIDS diseases.  They use an acceptable disease ‘Tuberculosis’, which shares the common characteristics of AIDS including infectious, exhausted, poor nutrition and lung injury, to replace the unacceptable disease ‘AIDS’, which means sexual indulgence, to deserve the punishment and shame, in order to have the capacity to face other people temporarily. Something more important is to continue family line by deliver offspring which Chinese traditional filial piety culture considered as the most major duty and ultimate purpose in entire life. "Without offspring" is the most unfortunate in Chinese culture which people with AIDS may encounter by not giving their disease transmit to innocence couple. It is also an unforgivable sin for people living with AIDS who can not have offspring and annihilate their cultural role.  AIDS carriers hope that they could survive till the discovery of antidote to set them free from the tangle of AIDS and wait for the miracle of recovery to health.