Weighing in on Health Literacy and Plain Language for Type 2 Diabetes

Monday, 31 October 2011

Carol Howe, MSN
Endocrinology, The Children's Hospital of Philadelphia, Philadlephia, PA
Erin Winterhalter, RD
Diabetes Center for Children, The Children's Hospital of Philadelphia, Philadelphia, PA

Learning Objective 1: Describe health literacy statistics and its potential impact on diabetes outcomes.

Learning Objective 2: Describe a Plain Language approach to printed patient education materials to increase readability.

Type 2 diabetes in adolescence is becoming a global public health concern with both developed and developing countries seeing increasing rates of diabetes. The top 3 countries, in numbers of people with diabetes, are India, China, and the United States.1 Aggressive self -management of diabetes is imperative to decrease the risks of devastating chronic health complications and its resultant burden on health care systems.  Adolescents need accessible information about diabetes disease, diet, exercise, medications, and complication risks.

While poor health literacy skills are evident in many countries, a large proportion of U.S. adults have limited skills and are unable to read a nutrition or medication label.2 Similarly, a recent study evaluating U.S. adolescent health literacy found that 46% were reading below grade level. 3

Most printed diabetes materials are for adults and fail to address the needs of adolescents.  Published pediatric materials do not include curriculum content identified in the national standards for diabetes self- management education by the American Diabetes Association.4 There is a need for printed pediatric type 2 education materials for adolescents.

This project was creative in both approach and output.  Materials were designed to be developmentally and culturally relevant, written in plain language, and to meet national standards.  Parents and adolescents participated in the review of drafts and provided input into content. The newly developed pediatric type 2 education materials will be presented. 

Wild, S. et. al. (2004). Global prevalence of diabetes. Diabetes Care, 1047-1053.

Yin, et al. (2009). The health literacy of parents in the United States: a nationally representative study. Pediatrics, 124 suppl, S289-S298.

Davis, T.C., et al. (2006). Development and validation of the rapid estimate of adolescent literacy in medicine. Pediatrics, 118, 1707-1714.

Funnell, et al. (2010). National standards for diabetes self management education. Diabetes Care, 33, S89-S96.