Educational Needs of Patients with a Stroke and Their Caregivers: A Systematic Review of the Literature

Saturday, 29 October 2011

Thóra B. Hafsteinsdóttir, RN, PhD
Department of Nursing Science, Clinical Health Sciences, Faculty of Medicine, Utrecht University and University Medical Center Utrecht, Utrecht, Netherlands
Martine Vergunst, RN, MSc
Department of Neurology, University Medical Center Utrecht, Utrecht, The Netherlands, Utrecht, Netherlands
Eline Lindeman, MD, PhD
Department of Rehabilitation and Sportsmedicine, Rudolf Magnus Institute of Neuroscience, University Medical Center Utrecht, Utrecht, Netherlands
Marieke Schuurmans, RN, PhD
Department of Rehabilitation, Nursing Science & Sports, University Medical Center Utrecht, Utrecht, The Netherlands, 3508 AB Utrecht, Netherlands

Learning Objective 1: The learner will be able to summarize the educational needs of patients with stroke during all phases after the stroke.

Learning Objective 2: The learner will be able to summarize the educational needs of caregivers of patients with stroke during all phases after the stroke.

Objective: Systematic review of evidence on patients’ and caregivers’ educational needs in different phases after stroke.

Method:   Search was conducted of Medline, CINAHL, EMBASE, PsychINFO and Cochrane Library (1999-2009) returning 939 articles. 14 studies met all inclusion criteria and were of sufficient methodological quality.

Results:    Educational needs of patients mainly concern the knowledge of the stroke, prevention, treatment and recovery, whereas the most described needs of caregivers focus on knowledge of stroke, consequences, care facilities for support and prevention.

Conclusion:   Educational needs were experienced as important by stroke patients and caregivers, but these were often not met. Educational needs change over the time. Patient and caregivers needed information that is tailored to their own situation and they wanted to receive information verbal and in writing. It was found important that health care professionals take time to answer questions and answer them honestly.

Practice implications:   Health care professionals need to inquire with individual patient and caregiver concerning their educational needs. They need to plan how to provide educational interventions and bear in mind the individual differences between patients and carers. Educational needs should be taken into account for the development of educational interventions. More support is needed from leadership and management.