Monday, November 3, 2003

This presentation is part of : Theory and Research

Engulfment in Three Distinct Chronic Illness Populations: Theoretical and Research Perspectives

Elizabeth McCay, RN, PhD, School of Nursing, Ryerson University, Toronto, ON, Canada and Heather Beanlands, RN, PhD, School of Nursing, Ryerson University, Toronto, Ontario, Canada.
Learning Objective #1: Describe the theoretical construct of engulfment, a process by which identity is lost, leaving individuals to consider themselves as only exemplars of a particular illness
Learning Objective #2: Describe the research findings related to engulfment in three clinical populations (schizophrenia; renal disease & bone marrow transplantation). Through this overview it will be evident that the engulfment framework has the capacity to drive the development of clinically relevant intervention models

Objective: Engulfment describes the process by which identity is lost, leaving individuals to consider themselves as only exemplars of a particular illness. This paper will present the engulfment framework and research findings from three clinical populations (schizophrenia; renal disease & bone marrow transplantation, BMT).

Design: The results of three cross-sectional studies in schizophrenia; renal disease & BMT populations will be presented.

Population, Sampling, Setting: Schizophrenia: 45 subjects were recruited from the First Episode Schizophrenia Program at the Centre for Addiction and Mental Health. Renal: 200 subjects were recruited from three University teaching hospitals. BMT: 90 subjects receiving allogenic BMT for a haematologic malignancy were recruited from Princess Margaret Hospital in Toronto.

Methods (Concept or Variables Studied Together): All three studies have employed the Modified Engulfment Scale (MES) to gather self-concept data, and have measured related variables, such as symptoms, depression & quality of life enabling comparisons across all three clinical populations.

Findings: Schizophrenia: The findings demonstrate significant correlations between self-concept (TSCS-personal) and the MES and quality of life. Renal: MES scores were positively correlated with course of illness, symptoms, illness intrusiveness and depression. BMT: MES scores correlated in a meaningful way with hopelessness, depression, self-esteem, symptoms, illness intrusiveness and intrusive thoughts related to the illness. The findings will be illustrated with qualitative quotes from all clinical groups.

Conclusions: The collective results indicate that engulfment provides a useful perspective for understanding the impact of chronic illness on the self-concept. Results provide evidence of the reliability and validity for the MES across all three populations.

Implications: The research findings support the theoretical assertion that engulfment is closely affiliated with increased psychosocial and emotional distress, as well as decreased life satisfaction. Chronic illness exerts a profound effect on the experience of the self and thus on psychological adjustment and ultimately quality of life.

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