Paper
Monday, November 14, 2005
This presentation is part of : Family Adaptation
Using a Support Group Webcasting Service: Experiences of Patients and Caregivers With Implantable Defibrillators
Nancy Finch, RN, PhD, College of Nursing, Medical University of South Carolina, Charleston, SC, USA and Lawrence B. Afrin, MD, Hollings Cancer Center, Medical University of South Carolina, Charleston, SC, USA.
Learning Objective #1: Describe an innovative approach to offering a support group service over the Internet
Learning Objective #2: Discuss the experiences of patients and their caregivers in participating in an Internet-based support group service

The Implantable Cardioverter Defibrillator (ICD) has become the dominant therapeutic modality for patients with life threatening ventricular dysrhythmias. Whereas most ICD recipients adjust well to living with the device, a substantial minority experience fear and anxiety that appear to be related to the ICD. Therefore support of recipients of ICDs is an ongoing concern for nurses.

Support groups have been used by individuals with chronic illness to cope with emotional stress. The in-person, moderated group meeting remains the “gold standard” but can be medically and/or logistically challenging for participants to attend. Addressing confidentiality concerns, a prototype of a web-based method for remote participants to attend in-person support group meetings has been developed. Using available personal computing technology, authorized remote participants gain a real-time, audiovisual connection to the group meeting, and on-site participants can receive and discuss comments from remote participants submitted to, the group moderator.

Purpose: A pilot study was conducted using an ICD support group for evaluation. The group met monthly and had 5-10 participants in attendance. Remote participants were solicited via email and Internet bulletin boards used by ICD patients for peer support. The sample included (n=29) ICD recipients and (n=13) caregivers who attended in-person sessions. There were 4-8 remote participants signed on for each session. Data were collected for eight months.

Methods: A 5-item Likert style questionnaire was developed to measure group satisfaction with this innovative interaction. Subjects were asked to place a mark on the scale that best represented their satisfaction with the session. The response codes were from 1=very negative to 5=very positive.

Results: The responses were analyzed from both ICD recipients and caregivers attending the in-person group collectively (n=42). The experience of participating in a webcasted support group was found to be highly favorable as evidenced by the median satisfaction scores of >4.5.