Learning Objective 1: The learner will be able to understand the emerging field of information practices in health care.
Learning Objective 2: The learner will be able to understand the relationship between information, knowledge and experience used by people with chronic kidney disease.
Methods: The study employed a constructivist methodology that focused on how people develop information practices that enable them construct knowledge about their condition and treatment options. People with CKD living in Brisbane were purposively selected and interviewed. Data was subject to thematic analysis by an international collaboration of researchers from nursing and information science.
Results: The results reveal two types of patients. One type appears to adopt a ‘received’ view of information who did not question their condition or its treatment regimen. They passively accepted information from fewer sources and seemed to rely primarily on information from the nephrologist. In another type, patients were ‘engaged’; they actively identified their information needs, quickly learned what that they needed to ask and who to ask. These patients used a wider range of information sources and trusted information from the renal multi-disciplinary team.
Conclusion: Understanding information practices of people who have complex chronic conditions, particularly the variety of information sources used is useful for nurses when planning, implementing and evaluating patient educational strategies.