Understanding the Experience of Living with Myasthenia Gravis: A Qualitative Study with Taiwanese People

Thursday, 2 August 2012: 3:15 PM

Yu-Tai Chen, RN, MSN
Department of Nursing, Shin Kong Wu Ho-Su Memorial Hospital, Taipei, Taiwan
Fu-Jin Shih, DNSc
School of Nursing, National Yang-Ming University, Taipei, Taiwan
Hou-Chang Chiu, MD
Shin Kong Wu Ho Su Memorial Hospital, M001012@ms.skh.org.tw, Taipei, Taiwan
Mark Hayter, PhD
The School of Nursing and Midwifery, The University of Sheffield, Sheffield, United Kingdom

Learning Objective 1: The illness experience of patients with myasthenia gravis.

Learning Objective 2: The challenges and coping of patients with myasthenia gravis.

Purpose:

 This study explores the illness experience of patients with myasthenia gravis, their experiences of illness, its challenges and their coping and support strategies.

Methods:

 In depth interviews were undertaken with 9 participants with MG

Results:

 Date were subjected to inductive content and thematic analysis. Four themes emerged from myasthenia gravis patients with associated sub-themes. They were “perceptions of myasthenia gravis’’, the “challenges of myasthenia gravis’’, “social support’’ and “adapting and adjusting myasthenia gravis”.

Conclusion:

The importance of social and peer support is a key factor as well as the development of psychological strategies to live with MG. The recognition that there was a need to recognise the role of Western medicine in controlling their disease was also an important finding.