Understanding the Experience of Living with Myasthenia Gravis: A Qualitative Study with Taiwanese People

Thursday, 2 August 2012: 3:15 PM

Yu-Tai Chen, RN, MSN
Department of Nursing, Shin Kong Wu Ho-Su Memorial Hospital, Taipei, Taiwan
Fu-Jin Shih, DNSc
School of Nursing, National Yang-Ming University, Taipei, Taiwan
Hou-Chang Chiu, MD
Shin Kong Wu Ho Su Memorial Hospital, M001012@ms.skh.org.tw, Taipei, Taiwan
Mark Hayter, PhD
The School of Nursing and Midwifery, The University of Sheffield, Sheffield, United Kingdom

Learning Objective 1: The illness experience of patients with myasthenia gravis.

Learning Objective 2: The challenges and coping of patients with myasthenia gravis.


 This study explores the illness experience of patients with myasthenia gravis, their experiences of illness, its challenges and their coping and support strategies.


 In depth interviews were undertaken with 9 participants with MG


 Date were subjected to inductive content and thematic analysis. Four themes emerged from myasthenia gravis patients with associated sub-themes. They were “perceptions of myasthenia gravis’’, the “challenges of myasthenia gravis’’, “social support’’ and “adapting and adjusting myasthenia gravis”.


The importance of social and peer support is a key factor as well as the development of psychological strategies to live with MG. The recognition that there was a need to recognise the role of Western medicine in controlling their disease was also an important finding.