Learning Objective 1: The illness experience of patients with myasthenia gravis.
Learning Objective 2: The challenges and coping of patients with myasthenia gravis.
This study explores the illness experience of patients with myasthenia gravis, their experiences of illness, its challenges and their coping and support strategies.
In depth interviews were undertaken with 9 participants with MG
Date were subjected to inductive content and thematic analysis. Four themes emerged from myasthenia gravis patients with associated sub-themes. They were “perceptions of myasthenia gravis’’, the “challenges of myasthenia gravis’’, “social support’’ and “adapting and adjusting myasthenia gravis”.
The importance of social and peer support is a key factor as well as the development of psychological strategies to live with MG. The recognition that there was a need to recognise the role of Western medicine in controlling their disease was also an important finding.