The Experiences of Awareness in Patients with Early Stage Chronic Kidney Disease

Wednesday, 24 July 2013

Chiu-Chu Lin, PhD
School of Nursing, Kaohsiung Medical University, Kaohsiung, Taiwan
Fu-Mian Tsai, RN, MS
Department of Nursing, Chung Hwa University of Medical Technology, Tainan, Taiwan
Jia-Hui Sun, BS
Department of Nursing, Chung-Ho Memorial Hospital, Kaohsiung Mecial University, Kaohsiung, Taiwan

Learning Objective 1: The learner could understand how patients with early stage CKD become aware of their disease from their points of view.

Learning Objective 2: The learners could understand the essence of health teaching in accordance with patientsí awareness experience.

Purpose: Preventing the progression of chronic kidney disease (CKD) and avoiding early entry into the dialysis stage are urgent issues. However, limited information is known about how patients with early stage CKD become aware of their disease from their points of view. The purpose of this study was to describe the experiences of awareness among Taiwanese patients with early stage CKD. 

Methods: A purposive sampling was used to recruit patients diagnosed with early-stage CKD from the diabetes and nephrology departments of three hospital in Taiwan. Using Colaizzi’s phenomenological method, 15 patients provided in-depth, audiotaped interviews that were then transcribed and analyzed.

Results: The results from analysis of the transcripts revealed three categories and seven themes. The first category, Self-interpreting the disease, included three themes: easy to neglect the occurrence of asymptomatic CKD, treating a weak or failing kidney as not kidney disease, and searching evidences for confirmation. The second category, Need for disease-specific information, included two themes: need for treatment and self-care information, and need for disease progression information. The third category, Adapting to the disease, included two themes: try alternative treatments and managing comorbidities

Conclusion: The findings provide understanding of early-stage CKD patients who need guidance and information from health professionals to increase their own awareness of their disease and to facilitate their self-management behavior.