Involving Stakeholders in the Development of Family Nursing Intervention: The Story of a Collaboration Project Between Researchers, Nurses, Families and Health Care Professionals

Wednesday, 24 July 2013

France Dupuis, PhD
Faculty of Nursing, University of Montreal, Montreal, QC, Canada
Marie-France Vachon, MSN
Bone Marrow Transplant Program - Hemato-oncology department, CHU Sainte-Justine, Montreal, QC, Canada

Learning Objective 1: The learner will be able to identify specific steps important to consider in research methodology approaches that favours translation of knowledge from research to practice.

Learning Objective 2: The learner will be able to avoid frequent pitfalls in using family nursing interventions with families having adolescents living with chronic illnesses.


More than 90% of adolescents suffering from chronic illness now survive to adulthood. However, most of them need a long-life type of medical follow-up in order to control the disease, suggesting that they must acquire a certain degree of autonomy if they want to stay healthy. In this context many researchers suggest that the process of autonomy development is systemic, and involves many people, though few nursing interventions take into consideration that systemic perspective. This qualitative case study was then based on a theoretical systemic framework, in order to consider the development of knowledge in this field, at multiple levels. 

Purpose of the study: Development and validation, in a coevolving process, of a systemic family nursing intervention to support the development of autonomy in families who have an adolescent suffering from a chronic illness. 


Using a research-action methodology approach, the study combined several data collections methods, involving multiple stakeholders being: eight adolescents, eight parents, four nurses, and four health care professionals ‘teams. Semi-structured interviews and focus groups were conducted. Data collection and analysis were blended in a cyclic process, to assure feasibility and sustainability of the intervention. 


This poster presentation will highlight specific steps in the research process as well as some indicators of the progression of autonomy in this population. Partial results will also be presented in the form of a systemic model of a family nursing intervention for this population. 


These results are of upmost importance for the development of nursing practice in a systemic fashion, and will also contribute to the development of the concept of autonomy in this context. Most importantly, by bringing together not only researchers and health care professionals but also family members, the use of this challenging research methodology certainly went further into the translation of knowledge into practice.