Child and Family-Centered Care: Consensus Recommendations From a Panel Meeting

Friday, 28 July 2017: 3:10 PM

Mohammad Al-motlaq, PhD, MBS, BSN
Maternal Child and Family Health, Hashemite University, Zarqa, Jordan

Introduction: Published literature on FCC model reached no consensus on the appropriate definition of the model. International literature fluctuates with no proven efficacy of the model and it has limitations when applied to children themselves. Consequently, differences in clinical practice may influence the expected outcomes particularly in specialized units such as PICUs and NICUs. This has led some pediatric researchers in this field to adopt several different approaches and philosophies to shape what can be called "their best view" of a child and family centered model of care. Finally, differences between countries/cultures were not considered deeply in previous investigations.

Purpose: These concerns prompted a panel of pediatric experts to adopt new strategy to develop a taxonomy to define CCC and FCC and to make recommendations regarding its core principles and research priorities.

Methods: A Delphi approach will be used to clarify all factors surrounding CCC and FCC. The goals are 1) to develop taxonomy to define CCC and FCC; 2) to offer recommendations regarding proper implementation of FCC core principles; and 3) to identify priorities for future research in CCC including expected outcomes and cultural differences. The panel also hopes to foster collaborative relationships with other interested parties for future international research on pediatric models of care.


Members of the panel will meet in 2017 to develop an appropriate methodology to explore the consensus outcomes. The panel will also select subtopics to discuss and will seek potential experts with relevant qualifications and research track record to supplement the original members of the panel and representing as many countries/cultures as possible.

Step 1: agree upon the first symposium subtopics

Step 2: Write recommendations based on the symposium

Step 3: formulate a method for agreement on each topic; this will possibly include Likert scales for scoring, e.g. "strong agreement" can be assigned to concepts if an average of 5 out of 7 is achieved, while a "Weak agreement" can be assigned for a score less than 5. Weak statements can be re-discussed and re-evaluation is conducted.

This will give a consensus way forward for developing a plan for a comprehensive research program.