Non-Traditional Community Partnerships for Recruiting Hispanic Research Participants

Saturday, 29 July 2017: 1:30 PM

DeAnne K. Hilfinger Messias, PhD, MS, BAS, BS
College of Nursing and Women's and Gender Studies Program, University of South Carolina, Columbia, SC, USA

Purpose: Language, culture, geographic, social, and economic factors are associated with health disparities. Among more recent Hispanic immigrants, limited-English-proficiency and immigration status are barriers to health information and healthcare access. Improved access to culturally and linguistically tailored health information through technology could potentially enhance healthcare access and health outcomes. However, little is known about health information-seeking through technology among Hispanics in recent settlement areas (Lopez, Gonzalez-Barrera, & Patten, 2013). This primary aim of this collaborative research was to assess access and utilization of technology for health information among Hispanics in South Carolina. To effectively reach and engage community-dwelling Hispanics in research, investigators frequently must address potential barriers related to language, culture, location, and trust (Victorson, et al., 2014). To address these barriers, we engaged with non-traditional community partners to recruit a wide range of community-dwelling Hispanics.

Methods: We developed the interviewer-administered data-collection instrument, The Use of Technology and Health, a Spanish-language interviewer-administered, 47-item Spanish language survey with four components: access to care, health and health care information, technology and health, and participant demographics. Trained bilingual data-collectors administered the surveys in Spanish in a variety of non-traditional research settings. Data collection occurred at the Hispanic- free clinic, local churches, tiendas (stores), flea markets, English-as-a Second Language classes, and Mobile Mexican Consulate events at local schools.

Results: We conducted the first wave of surveys (n= 216) in 2011 and a second wave (n=156) in 2015-2016. For the first wave we used interviewer-administered paper and pencil surveys; during the second wave the interviewers at some sites utilized smart phone technology to directly enter data. Individual interviews lasted between 10-30 minutes. The survey design was such that not all participants were asked all questions. For example, if a participant answered “no” to questions regarding access/ownership of a cell phone or computer, the interviewer skipped the follow-up questions regarding cell phone or computer usage, shortening the interview.

Conclusions: This community-based and community-engaged research was a collaborative effort involving the South Carolina Hispanic/Latino Health Coalition, the Clínica del Buen Samaritano, the University of South Carolina College of Nursing, and several local and bi-national non-traditional research partners. The inclusion of non-traditional community partnerships enhanced access to the target population in “naturally-occurring” settings.