Uncertainty in the Medically-Managed Patient With Coronary Heart Disease

Sunday, 28 July 2019

Donna K. Garrett, MSN
Marcella Niehoff School of Nursing, Loyola University Chicago, Maywood, IL, USA
Karen L. Saban, PhD
Marcella Niehoff School of Nursing, Loyola University Chicago and Edward Hines Jr. VA Hospital, Maywood, IL, USA

As of 2016, 28.1 million adults in the US were diagnosed with coronary heart disease (CHD). Symptoms of CHD are chronic and include shortness of breath, chest pain, chest discomfort and fatigue. Evidence suggests that individuals newly diagnosed with CHD often experience feelings of uncertainty about their futures. Uncertainty and lack of perceived control are barriers to the development of self-management skills needed to manage symptoms and prevent disease progression. Depressive symptoms, the presence of comorbid conditions, and the quality of the nurse-patient relationship may influence the ability of the patient to self-manage their disease. The purpose of this study was to examine the relationships among uncertainty, perceived control, and self-management in individuals diagnosed with CHD that are medically managed controlling for depressive symptoms, the number of comorbid conditions, and the nurse-patient relationship (nursing presence), age and sex. The aims of this study were to: 1) determine the extent to which the number of CHD symptoms predict uncertainty and self-management; 2) examine the degree to which uncertainty predicts self-management; and 3) evaluate perceived control as a mediator of uncertainty and self-management. A modified version of Mishel’s Theory of Uncertainty in Illness guided the study. A convenience sample of 71 participants was enrolled post-cardiac catheterization from four different acute care hospitals. Participants completed a written survey packet after discharge that included measures of uncertainty (Mishel Uncertainty in Illness – Community scale [MUIS-C]); symptoms (Acute Coronary Syndrome Checklist [ACS Checklist]); self-management (Acute Coronary Syndrome Response Index [ACSRI]) with three subscales, knowledge, attitude and belief; perceived control (Control Attitudes Scale – Revised [CAS-R]); depressive symptoms (Center for Epidemiologic Studies-Depression Scale); number of comorbidities (Self-Administered Comorbidity Questionnaire); and nurse presence (Presence of Nursing Scale). The study packet was mailed to each participant and returned via postal mail to the principal investigator. Descriptive statistics were conducted to summarize demographics and multiple regression was used to assess relationships among key variables controlling for depressive symptoms, number of comorbidities, and nursing presence, age and sex. Study participants were primarily White/non-Hispanic (67.7%), male (73.2%), married (74.6%), retired (54.9%), had some college education (55%) and had a household income between $50,000 - $100,000 (40.8%) with a mean age of 67.17 (± 11.37). Participants reported average levels of uncertainty (MUIS-C) mean=59.36 (±13.1, range 29-88), symptoms (ACS Checklist) mean = 5.98 (±3.34, range 1-13), and self-management (ASCRI) Knowledge subscale mean =14.12 (± 3.47, range 4.2-19); Attitude subscale mean =15.24 (± 2.8, range 5-20); and Belief subscale mean = 22.36 (± 3.42, range 15-28). Furthermore, participants reported average levels of perceived control (CAS-R) mean = 28.23 (± 6.39, range 14-40) as compared to the literature. Regression analysis revealed that the number of symptoms was not associated with uncertainty or self-management. However, lower levels of uncertainty predicted higher levels of self-management (ACSRI) Belief subscale (F=2.435, p=.038) and greater levels of uncertainty predicted lower levels of perceived control (F=12.313, p=<.001). Additionally, perceived control predicted greater self-management (ASCRI) Attitude subscale (F=3.607, p=.005). The conditions for mediation analysis were not met. Findings suggest that minimizing uncertainty and promoting perceived control may help patients better self-manage their CHD. A greater understanding of the relationships among symptoms, uncertainty, perceived control, and self-management is imperative to further inform the state of nursing science related to the needs of CHD patients that are medically managed and will enable nurses to assist patients with CHD that are medically managed in the development of self-management skills.