Paper
Friday, July 23, 2004
10:00 AM - 10:30 AM
Friday, July 23, 2004
3:00 PM - 3:30 PM
This presentation is part of : Posters II
A Qualitative Approach to Understanding Patients' Diagnosis of Lyme Disease
Debra Drew, RN, MS, nursing, Apria Healthcare, Yarmouth, ME, USA and Hilary Hewitt, RN, BSN, nursing, Midcoast Hospital, Brunswick, ME, Vanuatu.

Clinical Problem: Lyme disease is caused by the bacterium Borrelia burgdoferi and transmitted to humans by the deer tick. Lyme disease is the most prevalent vector borne disease in the United States with approximately 15,000 new cases reported each year. Chronic Lyme disease has been referred to as the “great imitator” because patients often present with vague, flu-like symptoms. With less than 60% of patients reporting the classic bull’s eye rash diagnostic for Lyme disease long-term sequela may develop. Untreated Lyme disease may lead to chronic, debilitating and disabling illness.

Objective: To gain a better understanding of the experience of becoming diagnosed with Lyme disease.

Design: A qualitative phenomenological design was chosen for this study.

Population: Subjects were chosen from an area known to be endemic with Lyme disease.

Methods: Ten subjects were purposefully chosen to be interviewed from a home infusion company’s database. Each subject was asked to describe his/her experience becoming diagnosed with Lyme disease during a tape-recorded interview. A research assistant then transcribed the interviews. The phenomenon studied was described as it was experienced by each subject without preconceived perceptions. The content analysis was analyzed by bracketing to identify any preconceived beliefs, intuiting or remaining open to the meaning of the phenomenon, and analyzing and defining the meaning of the phenomenon.

Findings: Analysis phase of the study is in process. Findings will be validated with the subjects and common experiences will be grouped into themes.

Conclusions: Emerging themes have not been identified by prior research. Early interventions may spare these patients from many difficulties identified in the interviews.

Implications: The sharing of these lived experiences may help health care professionals be more effective when working with this patient population. Qualitatively based nursing interventions can be designed to support the community at risk for Lyme disease.

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Sigma Theta Tau International
July 22-24, 2004