Paper
Thursday, July 14, 2005
Effects of a Frequently Asked Questions (FAQ) Module on a Pancreatic Cancer Web Site Patient/Family Chat Room
JoAnn Coleman, RN, MS, ACNP, AOCN, Surgery, Johns Hopkins Hospital, Baltimore, MD, USA
Learning Objective #1: List three ways the use of a FAQ module impacts delivery of health information |
Learning Objective #2: Identify two characteristics of users of a pancreatic cancer Web site chat room |
Securing accurate information about treatment and prognosis is important to those with pancreatic cancer given its high mortality and short survival. The purpose of this qualitative study was to determine the effect of a Frequently Asked Questions (FAQ) module on postings in the Chat Room of a pancreatic cancer website. Six hundred postings were analyzed. Three themes were isolated: Information (seeking, giving or both), Support (seeking, giving or both), and Reporting (status or death). Information included: treatments, nutrition, prognosis, end of life care, cost of care, symptoms, and support (social, emotional, spiritual, or physical). A greater proportion of postings sought information after the FAQ module was added although questions about medical treatment decreased while questions about prognosis and end of life care nearly doubled. There was no difference in the proportion of postings addressing support. Medical treatment was the most common treatment reported and pain was the most common symptom reported. This study supported the addition of a FAQ module to a pancreatic cancer website and revealed the need for information regarding pain management and care giving at the end of life.