Paper
Thursday, July 14, 2005
Integrating Computer Technology Into Blood and Marrow Transplant Family Caregiving
Loretta Williams, RN, MSN, Symptom Research, University of Texas M. D. Anderson Cancer Center, Houston, TX, USA
Learning Objective #1: List two uses of computer technology by blood and marrow transplant family caregivers |
Learning Objective #2: Describe one intervention using computers to support blood and marrow transplant family caregivers |
Significance: In 2003, the estimated value of family caregiving in the United States was approximately $257 billion. Blood and marrow transplant (BMT) is a potentially curative therapy for patients with life-threatening illnesses. Over the last 10 years, family caregiving has become an essential aspect of BMT. Problem and Purpose: In the last 20 years computer technology has become ubiquitous. Understanding how BMT caregivers interact with and use computer technology may be important for healthcare providers to adequately support caregivers. This study describes how BMT caregivers portray their interactions with and use of computer technology. Methods: This qualitative, descriptive study was part of a larger study that looked at the dynamics of family caregiving. After giving informed consent, 40 BMT caregivers at a Comprehensive Cancer Center in the south central United States participated in a single audiotaped story dialogue about the caregiving experience 15-30 days following the BMT. The dialogue guide did not contain a specific question or prompt about computer technology. Data Analysis: Transcribed dialogues were electronically searched, and statements that contained the words computer, Internet, or e-mail were extracted from the dialogues and grouped into categories to discover how the caregivers interacted with computer technology. Findings: Fifteen of 40 caregivers (37.5%) made reference to computer technology as they told their caregiving stories. Caregivers most often used computer technology to find information and communicate with family and friends. Implications: BMT caregivers need help to locate reliable information on the Internet. Providing Internet access for family caregivers during the BMT process can be helpful to the caregivers. Further research is needed to identify the ways that family caregivers utilize computer technology and to test interventions using computer technology to support caregivers.