Paper
Wednesday, July 21, 2004
This presentation is part of : Special Session: Improving the Psychosocial Care and Mental Health/Coping Outcomes of Critically Ill Children and Parents: Evidence to Guide Practice
Creating Opportunities for Parent Empowerment (COPE): Program Effects on Young Critically Ill Children and Mothers
Bernadette Mazurek Melnyk, PhD, RN, CPNP, FAAN, School of Nursing, Center for Research and Evidence-Based Practice, School of Nursing, Center for Research and Evidence-Based Practice, University of Rochester, Rochester, NY, USA

The purpose of this study was to evaluate the short- and long-term effects of a theoretically-driven reproducible intervention program (COPE) on the psychological and functional coping outcomes of critically ill young children and their mothers, up to 12 months following hospitalization. A multi-site randomized controlled trial was conducted with 174 mothers and their 2- to 7-year-old children who were unexpectedly admitted to the pediatric intensive care units of two children’s hospitals in Upstate New York and Pittsburgh, Pennsylvania.

The experimental intervention (COPE) was a three-phase educational/behavioral intervention, driven by self-regulation and control theories. Maternal process and outcome variables included: parental beliefs about their critically ill children and role, negative mood state, state anxiety, stress related to the PICU, participation in their children’s care, parental role change, and PTSD symptoms. Child outcomes included measures of child adjustment, including internalizing and externalizing behaviors, and PTSD symptoms.

Findings revealed that mothers in the COPE group, versus mothers in the control group, reported: (a) stronger beliefs regarding their hospitalized children’s responses and their parental role, (b) less stress on the parental stressor scale after transfer to the pediatric unit, (c) less anxiety and negative mood state, including depression, following hospitalization, and (d) fewer PTSD symptoms 12 months following hospitalization. Nurses, blind to study group, also rated the COPE mothers as more involved in their children’s physical and emotional care on the pediatric unit than control mothers. Six and 12-months following discharge from the hospital, children in the COPE group, in comparison to children in the control group, had: (a) fewer behavioral symptoms, (b) fewer externalizing problems, (c) fewer attention problems, (d) less hyperactivity, (e) less aggression, and (f) less depression.

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Sigma Theta Tau International
July 21, 2004