E 12 Through the Stigma Lens: Culture and Chronic Conditions

Monday, 31 October 2011: 1:45 PM-3:00 PM
Description/Overview: Cultural groups share beliefs and values that influence behaviors, which in turn, influence the social world of the person. During this symposium we’ll discuss findings related to stigma in four chronic conditions. Stigma will be defined using Goffman’s classic work as an attribute of the person that is discrediting. The leads to a social labeling process which identifies the person as deviant, leading to negative reactions and social isolation. Stigma has been addressed HIV-AIDS and mental illness, but less so in other chronic conditions Those who share a common chronic condition create their own cultural subgroups. Stigmatizing experiences frequently occur within these subgroups, and often have a forceful impact on health-related behaviors and social relationships. Frequently, though they are never discussed by either provider or the patients, but may be a source of great stress for the patient. Ethnographic data from studies on persons with Parkinson’s Disease, burn injuries, chronic pain, and a vascular access for hemodialysis will be used to illustrate stigmatizing experiences for persons with these conditions. Stigmatizing experiences from the presented conditions will then be compared and contrasted, and implications for practice discussed. Ethnographic research findings provide knowledge about stigma- related experiences within specific conditions, or cultural subgroups, and may reflect the experiences of many persons who share the condition globally. Providers can use the knowledge as a background for guidance and coaching related to these experiences. Stigma-related stress can then be decreased with open dialog between providers and patients.
Learner Objective #1: Compare and contrast stigmatizing experiences in four patient populations with different chronic conditions
Learner Objective #2: Discuss the clinical implications related to stigma in specific patient populations
Moderators:  Barbara Harland, RN, MSN, MEd, CNL, School of Nursing, Xavier University, Cincinnati, OH
Symposium Organizers:  Diane B. Monsivais, PhD, School of Nursing, The University of Texas at El Paso, El Paso, TX, Carlee R. Lehna, PhD, APRN, School of Nursing, University of Louisville, Louisville, KY, Cleo Richard, PhD, RN, College of Nursing, Texas Woman's University, Houston, TX, Melinda Hermanns, PhD, RN, College of Nursing, The University of Texas at Tyler, Tyler, TX and Joan Engebretson, DrPH, AHN-BC, RN, School of Nursing, UTHSC-Houston, Houston, TX
Stigma Experiences in a Major Childhood Burn Injury

Carlee R. Lehna, PhD, APRN
School of Nursing, University of Louisville, Louisville, KY



Stigma Experiences in Clients with a Vascular Access for Hemodialysis

Cleo Richard, PhD, RN
College of Nursing, Texas Woman's University, Houston, TX



Stigma Experiences in Persons with Non-Malignant Chronic Pain

Diane B. Monsivais, PhD
School of Nursing, The University of Texas at El Paso, El Paso, TX



The Invisible and Visible Stigma in Persons with Parkinson's Disease

Melinda Hermanns, PhD, RN
College of Nursing, The University of Texas at Tyler, Tyler, TX



The Stigma Experience Across Chronic Conditions

Joan Engebretson, DrPH, AHN-BC, RN
School of Nursing, UTHSC-Houston, Houston, TX