Create, Illustrate and Implement a Parkinson's Disease Self-Management Patient Education Guide

Tuesday, 19 November 2013: 9:10 AM

Pamela Willson, RN, PhD, FNP-BC, CNE, FAANP
Graduate Studies, Prairie View A&M University, College of Nursing, Houston, TX
Karen Stonecypher, MSN, RN
Parkinson's Disease Research, Education & Clinical Center, Michael E. DeBakey VA Medical Center, Houston, TX

Learning Objective 1: 1. Describe the process used to organize an interdisciplinary care team to develop and evaluate patient education materials.

Learning Objective 2: 2. Discuss the methods used to acquire artwork, publish, and evaluate a patient educational guide.

Problem: There were no patient specific education tools for Parkinson’s self-management that met the cultural needs of veterans’ at a large tertiary specialty care center with a large catchment area.

Methods: An integrated review of the literature was conducted using multiple databases and the following terms: Parkinson’s disease, self-management, and self efficacy. The information was reviewed and synthesized. National Parkinson’s Foundation, national clearing house guidelines and standards for care were reviewed. A consecutive sample of 26 veterans ranked their most troubling symptoms identifying the patients’ top concerns as tremor, dystonia, balance and speech difficulties.

Planning: A team was formed consisting of: nursing, social work, physical medicine and rehabilitation, speech pathology, nutrition, and a celebrated national illustrator, Mort Walker who collaborated on the development of The Veteran’s Self-Management Guide for Parkinson’s Disease©.

Implementation: The final product was approved by the hospital Patient Education Committee and adopted as the primary educational tool for neurology patients enrolled in the Parkinson Center.

Evaluation: Thirty patients and their care partners evaluated the guide using a 10-item Likert scale and open-ended comments.

Results: Patients were mostly male, Caucasian, mean age of 59 years. The majority of patients and caregivers found the guide to be an “excellent” or “very good” resource.

Outcomes: This team endeavor produced an evidence-based educational tool that addressed patient centered topics.  Veterans commented that they could relate to the advice offered by Beetle Bailey® character Sarge used in content illustrations. Consistent implementation by the interdisciplinary team improved provider-patient communication, self-management and patient learning.