Relationship between the Ability to Care and the Overload of Caregiver of People with Chronic Disease in Colombia

Monday, 9 November 2015

Sonia Carreno-Moreno, RN, MSN1
Lorena Chaparro Diaz, BSN, PhD2
Gloria Mabel Carrillo Gonzalez, RN, MSN1
Beatriz Sanchez Herrera, RN, MSN1
Lucy Barrera Ortiz, RN, MSN1
Elizabeth Vargas Rosero, RN, MSc2
(1)School of Nursing, Universidad Nacional de Colombia, Bogotá, Colombia
(2)School of Nursing, National University of Colombia, Bogotá, Colombia

RELATIONSHIP BETWEEN THE ABILITY TO CARE AND THE OVERLOAD OF CAREGIVER OF PEOPLE WITH CHRONIC DISEASE IN COLOMBIA

BACKGROUND

Chronic illness affects not only those who suffer it but also the family caregivers.1  The family caregiver assumes various tasks for which in most cases he or she is not ready. To assume the new role generates overhead associated with care.2,3 It has been explored the relationship between overload and gender of the caregiver,4 the time spent caring,5,6 depressive symptoms7 and social support,8,9 but not yet explored the relationship between the overload and the caregiver ability to care.

OBJECTIVE

To determine the relationship between the variables caregiver overload and ability to care of family caregivers of people with chronic non transmissible disease (CNTD) and to determine this relationship in the Colombian regions (Amazon, Caribbean, Andean, Pacific).

METHOD

Study of quantitative, correlational approach. The sample consisted of 2,040 family caregivers of people with chronic disease in Colombia (200 from Amazon, 1,677 of the Andean region, 86 from the Caribbean región and 77 from the Pacific region). The statistic of choice to determine the relationship between the two variables was the Spearman Rho coefficient. The instruments used were the Zarit Overload Interview (1980),10 which assesses the dimensions of impact, interpersonal, skills and expectations and the Care Skill Inventory proposed by Nkongho (1990),11  which has the dimensions Knowledge, Courage and Patience. Participation in the study was voluntary, and informed consent process was performed.

RESULTS

A weak but statistically significant negative correlation (p < 0.01) in Colombia (-0.219) and the Amazon (-0.289) and Pacific (-0.345) regions was found. In the Caribbean region (-0.483) a moderate and statistically significant negative correlation (p < 0.01) was observed. In the Andean region (-0043) (p = 0.079) there is no relationship between the ability to care and the caregiver burden.

CONCLUSION

In Colombia and Amazon, Pacific and Caribbean regions, a relationship between the two variables is observed, suggesting that the greater the ability to care, the less the caregiver overload. This may be in connection with some associated cultural protective factors that have yet to be explored. Finding no relationship between the two variables in the Andean region, it is assumed that for this population these variables operate independently and that their comparative evaluation does not determine the improvement of the status of the caregiver.

References

1 Rogero-García, Jesús. Las consecuencias del cuidado familiar sobre el cuidador: Una valoración compleja y necesaria. Index Enferm  [review in the Internet]. 2010  Mar [cited  2014,  Dic  13] ;  19(1): 47-50. Available at:

http://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1132-12962010000100010&lng=eshttp://dx.doi.org/10.4321/S1132-12962010000100010.

2 Goldstein, N.; Concato, J.; Fried, T.; Kasl, S.; Johnson-Hurzeler, R.; Bradley, E. Factors associated with caregiver burden among caregivers of terminally ill patients with cancer. J Palliat Care. 2004;20(1):38-43.

3 Zambrano Cruz, Renato; Ceballos Cardona, Patricia. Síndrome de carga del cuidador. rev.colomb.psiquiatr. [Series on the Internet].2007 Oct [cited, December 13, 2014]; 36 (Suppl 1): 26-39. Available at:

http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0034-74502007000500005&lng=en.

4 D'Onofrio, G.; Sancarlo, D.; Addante, F.; Ciccone, F.; Cascavilla, L.; Paris, F., et al. Caregiver burden characterization in patients with Alzheimer's disease or vascular dementia. Int J Geriatr Psychiatry. 2014 Dec 4.

5 Akpan-Idiok, P.; Anarado, A. Perceptions of burden of caregiving by informal caregivers of cancer patients attending University of Calabar Teaching Hospital, Calabar, Nigeria. Pan Afr Med J. 2014 Jun 18;18:159.

6 González, F.; Graz, A.; Pitiot, D.; Podestá, J. Sobrecarga de cuidador de personas con lesiones neurológicas. Revista del Hospital J.M. Ramos Mejía. 2004; 9(4). [Online]. [Cited, December 13, 2014]. Available at:

http://www.hospitalramosmejia.info/r/200404/7.pdf

7 Bozkurt Z.; Sunbul, M.; Zincir, S.; Aydin, S.; Oguz, M.; Feriha Cengiz, F., et al. Burden and depressive symptoms associated with adult-child caregiving for individuals with heart failure. Scientific World Journal. 2014;2014:641817.

8 Chien, WT; Chan, SW; Morrissey, J. The perceived burden among Chinese family caregivers of people with schizophrenia. J Clin Nurs. 2007 Jun;16(6):1151-61.

9 Jaracz, K.; Grabowska-Fudala, B.; Górna, K.; Kozubski, W. Caregiving burden and its determinants in Polish caregivers of stroke survivors. Arch Med Sci. 2014 Oct 27;10(5):941-50.

10 Zarit, S.; Reever, K.; Bach–Peterson, J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980; 20: 649-655.

11 Nkongho, N. (1990). The Caring Ability Inventory. In: Strickland, OL and Waltz, CF. Measurement of Nursing Outcomes: SelfCare and Coping. Vol. 4th Ed. New York: Springer Publishing Company, pp. 3-16.