Poster Presentation
Wednesday, 19 July 2006
9:30 AM - 10:00 AM
Wednesday, 19 July 2006
2:30 PM - 3:00 PM
Concealment and Silencement Among Family Caregivers of HIV Children: A Challenge and Themes for Health Education
Antonio Marcos Tosoli Gomes, Departament of Medical Surgical Nursing, Universidade do Estado do Rio de Janeiro, Rio de Janeiro, Brazil and Ivone Evangelista Cabral, PhD, Departament of Maternity and Child Nursing, Federal University of Rio de Janeiro, Montréal, QC, Canada.
| Learning Objective #1: understand how concealment and silencement could be negotiate between nurse educator and family caregivers of HIV child under antiretroviral medication. |
| Learning Objective #2: discuss the complexity of conducting a health education process with family caregivers and taking care of HIV children, in such bases on. |
HIV/AIDS children’s families deal with antiretroviral medication side effects and the results of social exposition, such as stigma and bias. Thus, this paper aims at unveiling these caregivers daily and analyzing the dimensions of care of children. Qualitative research was conducted with a creative-sensitive method within seven family caregivers and data were treated through discourse analysis. These caregivers daily routine in the medication implementation is marked by concealment and silencement. The first one was represented by linguistic regularities, as expressions and acronyms do not appear in their enunciation, and also in the way their lives are organized facing stigma and bias. The other occurred in the relationship with child. When caregivers are questioned about the medication, they answer in an evasive way. So, concealing and silencement are a new themes and represent a challenge for nurse educator in health education intervention and promoting an adhesion of HIV children to therapy.
Key words: Children. Pediatric nursing. Health education.
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Note: Research conducted with financial support from Conselho Nacional de Desenvolvimento Científico e Tecnológico (CNPq). Brasil. 2003-2005
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