Paper
Friday, 21 July 2006
This presentation is part of : Using Evidence to Approach Child Healthcare Issues
Using an Evidence-Based Approach to Improve Care for Children with Special Healthcare Needs
Jeanne-Marie Havener, PhD, RNCS, FNP, Nursing, Hartwick College and Bassett Healthcare, Oneonta, NY, USA, Cynthia Fullington, AD, RN, Pediatrics, Bassett Healthcare, Cooperstown, NY, USA, Katherine Holley, BS, RN, PICU, Albany Medical Center; Hartwick College, Albany, NY, USA, and Meghan Skahen, BS, RN, Pediatrics, Columbia-Presbyterian Hospital; Hartwick College, New York, NY, USA.
Learning Objective #1: develop an understanding of the basic tenets of the Medical Home Model.
Learning Objective #2: list several themes that emerged as important in more accurately meeting the needs of children with special health care needs.
Children with special health care needs (CSHCN) are defined by the Maternal and Child Health Bureau of the Health Resources and Services Administration as “those who have or are at elevated risk for a chronic, physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children in general (McPherson, 2000). A study published in Pediatrics found that as many as 18% of the children in the United States could be described as CSHCN.     The concept of the “medical home” originated in the late 1960s in recognition of the special health care needs of these children. The medical home concept recognizes the need for care that is accessible, continuous, comprehensive, family-centered, coordinated, compassionate, and culturally effective (Sia et al., 2002, p. 184). In this conceptual model all levels of care are provided by a primary care provider, working in concert with the patient and family, from birth through adolescence.     Using a focus group methodology, this research project aimed to better understand the particular needs of a rural pediatric population with special health care needs. Focus group data was gathered from both the care giver and care provider’s perspective to assist  the team in designing a system of care that incorporates the ideals of the medical home into a rural, primary care setting.

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See more of The 17th International Nursing Research Congress Focusing on Evidence-Based Practice (19-22 July 2006)