SYMPOSIUM
Friday, 21 July 2006: 8:30 AM-10:00 AM
Measurement: Design and Development of Instrumentation to Assess Patient Attitudes and Beliefs and to Collect Background Information
Learning Objective #1: 1. Participants will become familiar with the process of developing valid, reliable instruments to collect self-report data about subject characteristics in research studies.
Learning Objective #2: 2. Participants will be able to discuss the importance and complexity of collecting valid, reliable data about socio-demographic and co-morbidity factors in research studies.
This presentation describes the processes by which valid, reliable instruments to assess an individualís perception of how well a treatment regimen is capable of managing disease symptoms and his or her own ability to follow that regimen were developed. Design and testing of questionnaires to collect pertinent data about patientsí background characteristics across samples of chronic disorder populations is discussed in detail. Investigators at the University of Pittsburghís Center for Research in Chronic Disorders (CRCD) (P30 NR003924-11) have developed, validated, and tested measures to assess perceived therapeutic and self-efficacy in diverse patient populations. CRCD researchers have developed the CRCD Socio-demographic and Co-Morbidity questionnaires to best capture pertinent background data across studies of patients with chronic disorders. CRCD researchers developed three Perceived Self Efficacy Scales to assess outcome expectancies and patient behavior related to treatment adherence. The original instrument focused on medication adherence, subsequent modifications assessed adherence to diet and exercise regimens. Internal consistency and reliability statistics for all measures are presented. The process of constructing, scaling, and examining the psychometric properties of three investigator-developed instruments to assess patient self-efficacy is outlined in the second presentation. These measures focused on medication taking behavior in patients with HIV infection, abstinence from tobacco among hospitalized smokers, and adherence to a cholesterol lowering diet. CRCD researchers enlisted expert consultation to develop a questionnaire to measure the complex socio-demographic factors pertinent to health outcomes and common to samples across a variety of chronic disorders. Investigators worked together to develop a comprehensive questionnaire focused on health history and symptoms for 60 chronic disorders. The CRCD Socio-demographic and Co-Morbidity questionnaires are used in all Center studies making possible examination of subject characteristics across a wide variety of samples.
Organizer:Carol Stilley, PhD, RN
 Development of Standardized Sociodemographic and Co-Morbidity Questionnaires
Susan Sereika, PhD, Sandy Engberg, RN, PhD, CRNP
 The Perceived Therapeutic Efficacy Scale
Jacqueline Dunbar-Jacob, PhD, RN, FAAN, Lora Burke, PhD, RN, Elizabeth A. Schlenk, PhD, RN, Susan Sereika, PhD
 Development and Testing of an Appropriate Behavior-Specific Self Efficacy Instrument
Judith A. Erlen, PhD, RN, FAAN, Donna Caruthers, Lora Burke, PhD, RN