Poster Presentation

Wednesday, July 11, 2007
9:00 AM - 9:45 AM

Wednesday, July 11, 2007
2:45 PM - 3:30 PM
This presentation is part of : Poster Presentation I
A Study of Family Quality of Life of the Young Children with Developmental Disabilities in Taiwan
Chi-Chieh Tang, PhD, MSN, RN, Department of Nursing, I-Shou University, Kaoshiung County, Taiwan, Kaohsiung County, Taiwan, Hung-Chih Lin, PhD, Department of Special Education, National Changhua University of Education, Changhua, Taiwan, Jin-Ding Lin, PhD, School of Public Health, National Defense Medical Center, Taipei, Taiwan, and Yen-Hsuan Jean, PhD, MD, Orthopedic Department, Pingtung Christian General Hospital, Pingtung, Taiwan.
Learning Objective #1: know the development of scale of family quality of life
Learning Objective #2: know the predictors of family quality of life in the young children developmental disabilities in Taiwan

The aims of the study were both to examine the relationship among family life impacts, family coping strategy, and family quality of life (FQoL) of the young children with developmental disabilities (DD), and to identify and explore the core variable in the family adaptive process.  

       The methodology and design of the data collection had two parts. First was a quantitative validly and reliable questionnaire: Family Quality of Life Questionnaire for Young Children with Special Needs(FQoLQ-YCSN)(N=415 parents & grandparents). Second was the use of interview and narrative methods to elicit the options and experience of all participants(12 parents, 5 caregivers, 1 social worker, and 5 directors of institute of early intervention). The quantitative data obtained were statistically analysised by factor analysis, multivariate analysis of variance (MANOVA), Pearson’s correlation, canonical correlation, stepwise regression, and structural equation model; the qualitative data were analyzed by constant comparative method to identify concepts, subcategories, categories, and finally the core variable.  The major findings of this study were as follows:
1.  The most good family QoL factor was social well-being. A significant difference on total family QoL was found among the parent’s marital status, family type and income, social support network, burden of care , severity of disabilities, hour early intervention, and credit for disability. The predictors of family QoL were the family life impact, family coping effectiveness, burn of care, family income and communication.
2.      A exploratory factor analysis was used to test the factors influencing family QoL showed stronger and significant direct effects, the fitness of model was fair to good. The core variable was identified as enabling family empowerment.
     This is an exploratory study which is directed towards developing a substantive theory to explain the phenomenon of family QoL. A longitudinal study is needed to follow up the family adaptive process.