Poster Presentation
Wednesday, July 11, 2007
9:00 AM - 9:45 AM
Wednesday, July 11, 2007
2:45 PM - 3:30 PM
Evidence of Family-Centered Care: A "Report Card" to Ask the Child Patients
Linda A. Lewandowski, PhD, RN, College of Nursing, Wayne State University/CHildren's Hospital of Michigan, Detroit, MI, USA, Beverly Crider, Family-Centred Care Department, Children's Hospital of Michigan, Detroit, MI, USA, and Hitomi Kobayashi, MSN, RN, College of Nursing, Wayne State University, Detroit, MI, USA.
| Learning Objective #1: describe the importance of seeking evidence for the effectiveness of care from the patients themselves--even if they are children. |
| Learning Objective #2: describe the "CHM Family-Centered Care Report Card-Child Version" as a tool for measuring family-centered care. |
There has been a great deal of focus on family-centered care as “best practice” in pediatric settings. Family-centered care is “an approach to the planning, delivery, and evaluation of health care that is governed by mutually beneficial partnerships between health care providers, patients, and families. Family-centered care applies to patients of all ages, and it may be practiced in any health care setting.” (Institute for FCC) Previous assessment tools have been primarily from the staff’s point of view. A few studies have used proxy measures such as family outcomes and staff satisfaction. No previous tools measured FCC from the point of view of the pediatric patient. The purpose of this project was to develop a user-friendly tool to assess children’s and adolescent’s perceptions of their experience of family-centered care. A self-report tool was theoretically and empirically developed using a report card format in which the child is asked to rate items with a grade of “A” to “F” as to how well each had been achieved. An initial tool with 20 items was piloted tested on 88 inpatient children. Revisions were made and several items were added based on feedback from the children. The current revised “CHM Family-Centered Care Report Card-Child Version” tool has 31 items. After obtaining IRB approval, a one-time anonymous survey of 114 inpatients ages 6-19 yielded a Chronbach’s alpha of .93 indicating excellent internal consistency reliability. Content validity was established using multiple FCC experts. Factor analyses are ongoing. Items ranked the highest include “My mom, dad, or other family member can help take care of me if they want.” and “My family will know how to take care of me at home.” This new tool is an important addition to the quest to establish evidence of how well an institution has implemented FCC.