Learning Objective 1: The learner will be able to understand how the donor perceives her experience.
Learning Objective 2: The learner will be able to study how to develop a care system for living donors.
Methods: At the first stage, we studied how the donor perceives her experience. We interviewed twenty mothers who had been live kidney donors for their children, using a semi-structured question system. The transcripts were analyzed both quantitatively and inductively.
Results: The overall concept of the experience we obtained was<Never mind about me>. At the decision to transplant, we saw<The decision to transplant was wholeheartedly made from the wish to save my child>. It is notable that we cannot see any corresponding decision-making process, only the entrusting of maternal hopes. For the decision on who the donor would be, we saw <It was always going to be the mother>. This is noted by the mother’s feelings of self-recrimination and sense of responsibility, without any risk process seen. At the time of the operation, we saw<Surgery experience focused only on my child>. This is noted by an inability to see any role for the mother as a patient as well.
Conclusion: Donors have always been about sacrificing themselves, playing down their role. At the initial development of a care system for living donors, it is important to pay as much attention to donors as to recipients. In this way, they will begin to be able to see themselves as patients and concentrate on their donor experience as another patient without playing themselves down.
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