Family Involvement in Caring for Persons With Chronic Kidney Disease (CKD): Implications for Family Education

Sunday, 22 July 2018: 9:10 AM

Esther Shirley Daniel, PhD, RN, RM
The UWI School of Nursing, The University of The West Indies, St. Augustine, Trinidad and Tobago
Donna Shelly Ann Dublin, BSN
Liaison Office,, North West Regional Health Authority Port of Spain, Trinidad and Tobago., Port of Spain, Trinidad and Tobago

Purpose: The purpose of this study was to explore how Knowledge of Chronic Kidney Disease and social support influence the level of involvement of family caregivers.

Methods: Purposive sampling was used to attain the sample from the population. A three part self-administered questionnaire was utilized to gain required data.

Results:

  • 77% (46) had knowledge and information on CKD,
  • majority (77%) of the caregivers stated that they had knowledge of the disease,
  • 45% (27) of them were unaware of the number and various stages of CKD
  • 25% responded that they did not know the risk factors for developing the disease.
  • Half of the respondents were unaware of the blood test and other investigations done in the management of a person with CKD respectively.
  • The respondents are actively caring for persons with CKD however, 17% (10) and 13% (8) were unable to identify the common signs and symptoms which is essential in the effective management of the patient.
  • 27% (16) did not possess the knowledge on prevention of CKD
  • 15% (9) were unaware of the complications.
  • Fifteen percent (9) of the respondents indicated that they were not aware of the kidney friendly diet and important of exercise.
  • 14% caregivers had friends they could speak with about their problems,
  • 15% could not count on friends if anything goes wrong and
  • 12% got assistance from their friends.

Conclusion:

To reduce the progression of CKD, providing health education programs to the caregivers will be an effective strategy. Roomizadeh, Taheri & Abedini et al (2014) had indicated in their study how designing health education programs in order to educate the community and to adopt lifestyle changes will prevent or slow the progression of CKD

The results revealed that the majority of respondents indicated that they received information on CKD and its management. However, almost half of them (45%) were unaware of the risk factors. This indicates that there is a need for family education and better internalization of information received.