Rebuilding the meaning of quality of life in care: A Meta-Synthesis

Monday, 18 November 2013

Lorena Chaparro Diaz, RN, PhD
Nursing Faculty, Universidad Nacional de Colombia, Bogota, Colombia
Sonia Carreno-Moreno, RN, MSN
School of Nursing, Universidad Nacional de Colombia, Bogotá, Colombia

Learning Objective 1: The learner will be able to know results to meta-Synthesis from experience of family caregivers

Learning Objective 2: The learner will be able to know the Meta-synthesis methodology as strategy to build micro – theories.

Nontransmissible diseases affect the quality of life of people that are affected and their family caregivers. From the research that addresses the human health experience (the intangible component of chronic disease) it is required theoretically to build knowledge about the quality of life of family caregivers.  Objective: To integrate interpretation of scientific evidence (qualitative research) in the phenomenon of quality of life to family caregivers of people with chronic illness. Method: Meta-synthesis of 24 scientific research papers published qualitative (grounded theory, case studies, ethnography, phenomenology) on the phenomenon of quality of life of caregivers of people with chronic disease, published in electronic databases and the physical National University of Colombia. The method of analysis was proposed by Sandelowsky and Barroso (2007). Results: We found a pattern that connects the categories and variables underlying the theoretical assumptions of a theory of meaning of quality of life called "Rebuilding the meaning of quality of life in care". In This hypothesis it is based on three times and the meanings are: Living in distress, Living for the quality of life of another and build one's quality of life. The concepts of this theory are part of the chronicity experience lived by the caregiver and dependent on a few first moments of the quality of life of patients undergoing a full path and learning difficulties that make them resize and build a proper meaning of the quality of life of the work product of care. Implications: The results contribute to nursing knowledge in the area, to refine the concept of quality of life in a subject new to nursing care that are family caregivers as input for the construction of indicators to measure the burden of care on chronic disease.